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on the upside
Mom got a drainage yesterday. They took out 5 L of fluid which made a huge difference in how she’s feeling. She was super smiley and talkative today. I know part of it is from the pain pill she has to take but hell, thats all right with me. Whatever keeps the pain of having an organ deteriorate inside of you. I am hoping she’ll be up to go see the Avengers with me this weekend, today was a good day. And I am sure this weekend will be awesome too. Yay for positive days!!!
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Sh*t just got real
Hey there. Hey. Haven’t ventured on this part of town in a while. Forgive me. But I need to verbally vomit a lil bit.
I’m slightly robotic and numb as of right now so this may or may not make any sense. Just need to document my thoughts before I wash them away.
Mom has not been feeling well the last 3 weeks. Beginning of the 3 weeks she hadn’t been able to keep food down. (never happened before). She got over it. Her stomach started retaining the fluid again. It hasn’t done that in 10 months. Her eyes are yellow. We all know something is wrong.
Her MELD score was 8 when we first started this journey. 3 weeks ago it was 13 and today she tells me it’s 22. That’s how severe ones liver is damaged and also determines their priority on the organ waiting list. 25 is the score when you are pretty bad.
O.o I walk in the door today from work. Mom was there to open the door. Didn’t even say Hi. She just said “my score is now 22” I couldn’t hide the shock on my face. I could NOT believe it jumped that high so soon. Shit. This is getting real serious.
The look on my Dad’s face only showed fear and confusion. We all just pretended that everything will be o.k. We talked and joked around like normal…. a lil too much if you ask me. Too afraid to face the truth. She has to get alot worse before she gets better.
I’m feel like I’m just floating around. No feeling at all. It would be pointless for me to start crying and breaking down now. We have a long journey ahead of us. I got my mom a cool leather journal for Mothers day. I hope she writes down her feelings in there… Just to let it out. I can’t imagine how she’s feeling right now. This. is. scary.
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Well hello all. It’s been a minute since I’ve updated. Let’s see, I don’t really feel like typing so this will be short and bitter. Yesterday I missed work to take Mom to the E.R. We got there at 7 am and we left at 7 pm. Still without seeing a doctor. Yes the nurses checked her vitals every 3 hours but that was it. It was so crowded and nasty in the E.R. I’m surprised I lasted that long in there. It was fun people watching tho, it helped the time pass. Anywho, We left that hell hole and went home because the wait time was 12 to 24 hours to see a doctor. This is the Emergency Room mind you… 24 f*cking hours!!! People who were in the waiting room were there for over 24 hours so I don’t understand. I couldn’t fathom sitting there for another 12 hours. We said screw this, and left. This morning at 8 the E.R. called my Mom and said she should have been seen yesterday because her blood test was abnormal and she should go back to the E.R.
That was also a waste of time. They took another blood test and a urine test then made her sit back down in the lovely waiting room. :l She stayed there AGAIN today until 5pm when my dad got off work and went to see what was going on. Still no doctor so the left the E.R. I get home the same time they get home and I asked what happened. She said it was a waste of time to go there today. They didn’t do anything special, it was just a repeat of yesterday. Waiting… waiting… and more waiting….
When we checked the answering machine at home however, a doctor had called and said her surgery was reschedule for Feb 23. So the good news is she won’t have to be tapped, the surgery will remove all the fluid. YAY! That was a blessing, I totally forgot about the rescheduling of the ovarian cyst surgery. So all we have to do is hold on until Tuesday and the major surgery will be performed.
I’m scared but I know that it’s something that needs to be done and hopefully it will fix everything and my Mom can get back to normal and live a long healthy life.
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Surgery in Feb
Mom has been going to the liver specialist and the gynecologist since she’s been diagnosed with Hep C. Well, the gyn was for the cyst that was on her uterus.
Yesterday she went in to check on that and they said it got larger and they will have to remove it. They didn’t say it was cancerous because they aren’t sure until the actually go in and scrap it out then test it. I was wondering how they could do a surgery when she has all that fluid still in her belly. They said it will all come pouring out when they cut into her abdomen. SCARY!
I’m trying to stay positive and keep my faith that everything will turn out fine. She will get that thing removed and she will get better. That’s all I can write right now, my mind is all over the place.
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